A Rare and Bloodless Situation
Lancet 1999 November 13; 354(9191): 1734
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Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB). Rubinstein, Yaffa R; Groft, Stephen C; Bartek, Ronald; Brown, Kyle; Christensen, Ronald A; Collier, Elaine; Farber, Amy; Farmer, Jennifer; Ferguson, John H; Forrest, Christopher B; Lockhart, Nicole C; McCurdy, Kate R; Moore, Helen; Pollen, Geraldine B; Ric (2010-09)A movement to create a global patient registry for as many as 7,000 rare diseases was launched at a workshop, "Advancing Rare Disease Research: The Intersection of Patient Registries, Biospecimen Repositories, and Clinical ...
Carikas, David A. (1999)The medical and ethical challenge of treating Jehovah's Witnesses without blood transfusions is being met by dedicated professionals around the world. Jehovah's Witnesses have assisted by setting up a research department ...