Informed Consent for Cancer Registry Data Collection
Lancet Oncology 2000 December; 1: 197
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Potential Impact of the HIPAA Privacy Rule on Data Collection in a Registry of Patients With Acute Coronary Syndrome Armstrong, David; Kline-Rogers, Eva; Jani, Sandeep M.; Goldman, Edward B.; Fang, Jianming; Mukherjee, Debabrata; Nallamothu, Brahmajee K.; Eagle, Kim A. (2005-05-23)BACKGROUND: Implementation of the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule has the potential to affect data collection in outcomes research. METHODS: To examine the extent to which data ...
National Survey of British Public's Views on Use of Identifiable Medical Data by the National Cancer Registry Barrett, Geraldine; Cassell, Jackie A.; Peacock, Janet L.; Coleman, Michel P. (2006-05-06)Objectives To describe the views of the British public on the use of personal medical data by the National Cancer Registry without individual consent, and to assess the relative importance attached by the public to personal ...