Voluntariness of Consent to Research: A Conceptual Model
Appelbaum, Paul S.
Lidz, Charles W.
Hastings Center Report 2009 January-February; 39(1): 30-39
A good deal of policy and practice in human subjects research aims to ensure that when subjects consent to research, they do so voluntarily. To date, however, voluntariness and its impairment have been poorly conceptualized and studied. The legal doctrine of informed consent could provide a useful model.
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Appelbaum, Paul S.; Roth, Loren H.; Lidz, Charles W.; Benson, Paul; Winslade, William (1987-04)Using examples from psychiatric research, the authors explore the ethical dilemma of the "therapeutic misconception," where, despite explanation, patient-subjects believe that research protocols are designed to benefit ...