Hidden Empirical Research Ethics: A Review of Three Health Journals From 2005 Through 2006
DuBois, James M.
Volpe, Rebecca L.
Rangel, Erica K.
Journal of Empirical Research on Human Research Ethics 2008 September; 3(3): 7-18
We hypothesized that a significant amount of empirical data pertinent to research ethics is currently inaccessible to research ethics committee or Institutional Review Board (IRB) members for at least three reasons: it is published in non-ethics journals; articles are not adequately indexed using ethics-related keywords; and articles do not discuss the ethical significance of their data. We reviewed all articles from three health journals from January 2005 to December 2006, and identified 26 articles that contained data pertinent to research ethics. Only 7 articles contained keywords clearly related to research ethics; 15 of the articles contained no discussion of the ethical significance of their findings. Overall the articles we found constituted 2.2% of the research articles published in the three journals during the two-year period. If the same average number of articles were extrapolated to the top 100 of the approximately 5,000 journals indexed in MEDLINE, then at least 433 hidden ethics articles would be published each year. We conclude that better indexing of articles is needed, that IRB members and researchers need training to identify relevant data in the literature, and that IRB composition should include members from diverse disciplines familiar with ethics-relevant empirical data in their respective disciplines.
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Cultivating a Culture of Research Ethics Packet: Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (1998 With 2000, 2002, 2005 Amendments); Giving Voice to the Spectrum: Report of the Social Sciences and Humanities Research Ethics Special Working Committee to the Interagency Advisory Panel on Research Ethics (June 2004); Interpreting the TCPS: A Collection of Official Responses From the Interagency Advisory Panel and Secretariat on Research Ethics, Prepared In 2003, to Community Requests for Interpretations of the Tri-Council Policy Statement (December 2004): Ethical Conduct for Research Involving Humans (TCPS); Interpreting the TCPS: Volume II. the Second Collection of Official Responses From the Interagency Advisory Panel and Secretariat on Research Ethics to Community Requests for Interpretations of the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS) (December 2006); DVD: The Ethics of Research Involving Indigenous Peoples. Report of the Indigen Unknown creator (Canada. Interagency Advisory Panel and Secretariat on Research Ethics Social Sciences and Humanities Research Ethics Special Working Committee to the Interagency Advisory Panel on Research Ethics; Indigenous Peoples' Health Research Centre (IPHRC), 2004)
Dubois, James M; Bailey-Burch, Brendolyn; Bustillos, Dan; Campbell, Jean; Cottler, Linda; Fisher, Celia B; Hadley, Whitney B; Hoop, Jinger G; Roberts, Laura; Salter, Erica K; Sieber, Joan E; Stevenson, Richard D (2011-05)To describe community-engaged research (CEnR) and how it may improve the quality of a research study while addressing ethical concerns that communities may have with mental health and substance abuse research. This article ...