Disclosure of Incurable Illness to Spouses: Do They Want to Know? A Swedish Population-Based Follow-Up Study
Journal of Clinical Oncology 2008 July 10; 26(20): 3372-3379
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A Population-Based Nationwide Study of Parents' Perceptions of a Questionnaire on Their Child's Death Due to Cancer Kreicbergs, Ulrika; Valdimarsdottir, Unnur; Steineck, Gunnar; Henter, Jan-Inge (2004-08-28)A proposed nationwide postal questionnaire to Swedish parents who had lost a child due to cancer between 1992 and 1997 was denied approval by the local ethics committee. However, a pilot study to assess the harm and benefit ...
Axworthy, David; Brock, David J. H.; Bobrow, M.; Marteau, Theresa M. (1996-05-25)
Participant characteristics that influence consent for genetic research in a population-based survey: the Baltimore epidemiologic catchment area follow-up. Mezuk, Briana; Eaton, William W.; Zandi, Peter (2008-03)BACKGROUND: The purpose of this study is to investigate the sociodemographic and health characteristics associated with the willingness to donate a DNA sample, and consent to testing and long-term storage of that sample, ...