"You Say You're Happy, But ... ": Contested Quality of Life Judgements in Bioethics and Disability Studies
Journal of Bioethical Inquiry 2008; 5(2-3): 125-135
In this paper, I look at several examples that demonstrate what I see as a troubling tendency in much of mainstream bioethics to discount the views of disabled people. Following feminist political theorists who argue in favour of a stance of humility and sensitive inclusion for people who have been marginalized, I recommend that bioethicists adopt a presumption in favour of believing rather than discounting the claims of disabled people. By taking their claims at face value and engaging with disabled people in open dialogue over impairment and disadvantage, bioethicists may take to heart an important lesson about human fragility and resilience.
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Subjective Judgements of Quality of Life: A Comparison Study Between People With Intellectual Disability and Those Without Disability Hensel, E.; Rose, J.; Kroese, B. Stenfert; Banks-Smith, J. (2002-02)
Beyond the Medical Model? Disability, Formal Justice, and the Exception for The"profoundly Impaired" Goering, Sara (2002-12)The formal justice model proposed by Anita Silvers in Disability, Discrimination, and Difference emphasizes the social model of disability and the need for full equality of opportunity, and it suggests that a distributive ...