Alternatives to Project-Specific Consent for Access to Personal Information for Health Research: What Is the Opinion of the Canadian Public?
Willison, Donald J.
Journal of the American Medical Informatics Association 2007 November-December; 14(6): 706-172
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Alternatives to Project-Specific Consent for Access to Personal Information for Health Research: Insights From a Public Dialogue Willison, Donald J.; Swinton, Marilyn; Schwartz, Lisa; Abelson, Julia; Charles, Cathy; Northrup, David; Cheng, Ji; Thabane, Lehana (2008-11-18)BACKGROUND: The role of consent for research use of health information is contentious. Most discussion has focused on when project-specific consent may be waived but, recently, a broader range of consent options has been ...
Views on Health Information Sharing and Privacy From Primary Care Practices Using Electronic Medical Records Perera, Gihan; Holbrook, Anne; Thabane, Lehana; Foster, Gary; Willison, Donald J (2011-02)To determine how patients and physicians balance the perceived benefits and harms of sharing electronic health data for patient care and for secondary purposes.
Who's minding the shop? The role of Canadian research ethics boards in the creation and uses of registries and biobanks. Gibson, Elaine; Brazil, Kevin; Coughlin, Michael D.; Emerson, Claudia; Fournier, Francois; Schwartz, Lisa; Szala-Meneok, Karen V.; Weisbaum, Karen M.; Willison, Donald J. (2008-11-14)BACKGROUND: The amount of research utilizing health information has increased dramatically over the last ten years. Many institutions have extensive biobank holdings collected over a number of years for clinical and teaching ...