On a Bioethical Challenge to Disability Rights
Journal of Medicine and Philosophy 2007 November-December; 32(6): 541-561
Tensions exist between the disability rights movement and the work of many bioethicists. These reveal themselves in a major recent book on bioethics and genetics, From Chance to Choice: Genetics and Justice. This book defends certain genetic policies against criticisms from disability rights advocates, in part by arguing that it is possible to accept both the genetic policies and the rights of people with impairments. However, a close reading of the book reveals a series of direct moral criticisms of the disability rights movement. The criticisms go beyond a defense of genetic policies from the criticisms of disability rights advocates. The disability rights movement is said not to have the same moral legitimacy as other civil rights movements, such as those for women or "racial" minorities. This paper documents, and in some cases shows the flaws within, these challenges to the disability rights movement.
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Amundson, Ron; Tresky, Shari (2008)Continuing tensions exist between mainstream bioethics and advocates of the disability rights movement. This paper explores some of the grounds for those tensions as exemplified in From Chance to Choice: Genetics and Justice ...
Disability rights leaders from across the country, Jeremy Rifkin, and the Foundation on Economic Trend challenge first human genetic experiment at NIH meeting January 30, 1989; Federal law suit filed to halt first human gene experiment; Leaders demand establishment of a human eugenics advisory committee to review all human gene experiments Rifkin, Jeremy; Foundation on Economic Trends (1989-01-30)