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dc.creatorHellström, Ingriden
dc.creatorNolan, Mikeen
dc.creatorNordenfelt, Lennarten
dc.creatorLundh, Ullaen
dc.date.accessioned2016-01-08T23:20:24Zen
dc.date.available2016-01-08T23:20:24Zen
dc.date.created2007-09en
dc.date.issued2007-09en
dc.identifier.bibliographicCitationNursing Ethics 2007 September; 14(5): 608-619en
dc.identifier.urihttp://hdl.handle.net/10822/962921en
dc.identifier.urihttp://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Ethical+and+methodological+issues+in+interviewing+persons+with+dementia&title=Nursing+Ethics+&volume=14&issue=5&date=2007-09&au=Hellström,+Ingrid;+Nolan,+Mike;+Nordenfelt,+Lennart;+Lundh,+Ullaen
dc.description.abstractPeople with dementia have previously not been active participants in research, with ethical difficulties often being cited as the reason for this. A wider inclusion of people with dementia in research raises several ethical and methodological challenges. This article adds to the emerging debate by reflecting on the ethical and methodological issues raised during an interview study involving people with dementia and their spouses. The study sought to explore the impact of living with dementia. We argue that there is support for the inclusion of people with dementia in research and that the benefits of participation usually far outweigh the risks, particularly when a ;safe context' has been created. The role of gatekeepers as potentially responsible for excluding people with dementia needs further consideration, with particular reference to the appropriateness of viewing consent as a primarily cognitive, universalistic and exclusionary event as opposed to a more particularistic, inclusive and context relevant process.en
dc.formatArticleen
dc.languageenen
dc.sourceeweb:309037en
dc.subjectConsenten
dc.subjectDementiaen
dc.subjectResearchen
dc.subjectSpousesen
dc.subject.classificationInformed Consent or Human Experimentationen
dc.subject.classificationResearch on Mentally Disabled Personsen
dc.subject.classificationResearch on Elderly and Terminally Ill Personsen
dc.titleEthical and Methodological Issues in Interviewing Persons With Dementiaen
dc.provenanceCitation prepared by the Library and Information Services group of the Kennedy Institute of Ethics, Georgetown University for the ETHXWeb database.en
dc.provenanceCitation migrated from OpenText LiveLink Discovery Server database named EWEB hosted by the Bioethics Research Library to the DSpace collection EthxWeb hosted by DigitalGeorgetown.en


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