Community-Based Participatory Research and the Ethics Review Process
Journal of Empirical Research on Human Research Ethics 2007 March; 2(1): 31-41
This exploratory study examines the experiences of community-based participatory researchers' (CBPR) with the IRB. CBPR is oftentimes applied to non-clinical questions where academic researchers collaborate with community partners to address local concerns. Constant Comparative Method guided the analysis of ten CBPR interviews. The interview questions included: How does your conceptualization of research coincide with the regulations' definition? How are community partners involved in the IRB process? What are the benefits/challenges of the IRB process? And, what recommendations do you have to strengthen the IRB process? The article concludes with suggestions for IRB reviewers and CBPR partners on how to facilitate the review of CBPR projects.
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Relationships Between Community-Based Processes for Research Ethics Review and Institution-Based IRBs: A National Study Shore, Nancy; Drew, Elaine; Brazauskas, Ruta; Seifer, Sarena D (2011-06)Community groups are implementing research ethics review processes to determine whether and how research is conducted in their communities. We report on a survey of 109 of these community-based review processes about their ...
"It's Like Tuskegee in Reverse": A Case Study of Ethical Tensions in Institutional Review Board Review of Community-Based Participatory Research Malone, Ruth E.; Yerger, Valerie B.; McGruder, Carol; Froelicher, Erika (2006-11)Community-based participatory research (CBPR) addresses the social justice dimensions of health disparities by engaging marginalized communities, building capacity for action, and encouraging more egalitarian relationships ...
Shore, Nancy; Brazauskas, Ruta; Drew, Elaine; Wong, Kristine A; Moy, Lisa; Baden, Andrea Corage; Cyr, Kirsten; Ulevicus, Jocelyn; Seifer, Sarena D (2011-12)Institutional review boards (IRBs), designed to protect individual study participants, do not routinely assess community consent, risks, and benefits. Community groups are establishing ethics review processes to determine ...