Consent and Assent to Participate in Research From People With Dementia
Reimer, Marlene A.
Nursing Ethics 2007 January; 14(1): 27-40
Conducting research with vulnerable populations involves careful attention to the interests of individuals. Although it is generally understood that informed consent is a necessary prerequisite to research participation, it is less clear how to proceed when potential research participants lack the capacity to provide this informed consent. The rationale for assessing the assent or dissent of vulnerable individuals and obtaining informed consent by authorized representatives is discussed. Practical guidelines for recruitment of and data collection from people in the middle or late stage of dementia are proposed. These guidelines were used by research assistants in a minimal risk study.
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Culture, Consent, Costs and Care Homes: Enabling Older People With Dementia to Participate in Research Goodman, Claire; Baron, Natasha L; Machen, Ina; Stevenson, Elizabeth; Evans, Catherine; Davies, Sue L; Iliffe, Steve (2011-05)To describe factors that support and inhibit recruitment and participation of people with dementia living in care homes.
Alexander, Susan Jane (2010-04)In the past, ethics committees and researchers have avoided research among vulnerable groups because of prevailing perceptions that such research is unethical and difficult. Taking an opposite stand, this article will argue ...