The Effect of Consent Guidelines on a Multiple Sclerosis Register
Ford, Helen L.
Multiple Sclerosis 2006 February; 12(1): 104-107
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Holding Personal Information in a Disease-Specific Register: The Perspectives of People With Multiple Sclerosis and Professionals on Consent and Access Baird, W.; Jackson, R.; Ford, H.; Evangelou, N.; Busby, M.; Bull, P.; Zajicek, J. (2009-02)OBJECTIVE: To determine the views of people with multiple sclerosis (MS) and professionals in relation to confidentiality, consent and access to data within a proposed MS register in the UK. DESIGN: Qualitative study using ...
Ford, Helen L.; Johnson, Michael H. (1995-08)It is difficult to tell a person that s/he has multiple sclerosis. The diagnosis is based on clinical findings and often cannot be made on first meeting. In many cases investigations do not help. When the diagnosis is ...