Avon Longitudinal Study of Parents and Children (ALSPAC): Ethical Process
In: Gunning, Jennifer; Holm, Søren, eds. Ethics, law, and society. Volume 2. Aldershot, Hants, England; Burlington, VT: Ashgate, 2006: 65-74
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Response to Written Feedback of Clinical Data Within a Longitudinal Study: A Qualitative Study Exploring the Ethical Implications Lorimer, Karen; Gray, Cindy M; Hunt, Kate; Wyke, Sally; Anderson, Annie; Benzeval, Michaela (2011-01-27)There is a growing ethical imperative to feedback research results to participants but there remains a striking lack of empirical research on how people respond to individualised feedback. We sought to explore longitudinal ...
Enhancing the ethical conduct of genetic research: investigating views of parents on including their healthy children in a study on mild hearing loss Gillam, L.; Poulakis, Z.; Tobin, S.; Wake, M. (2006-09)Clinical genetic research is often regarded as more ethically problematic than other forms of research, and in some countries is subject to specific regulation, requiring researchers to follow specialised guidelines. In ...