What Factors Are Important to Parents Making Decisions About Neonatal Research?
Archives of Disease in Childhood: Fetal and Neonatal Edition 2005 May; 90(3): F267-F269
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Nathan, Aruna T.; Hoehn, K. Sarah; Ittenbach, Richard F.; Gaynor, J. William; Nicolson, Susan; Wernovsky, Gil; Nelson, Robert M. (2010-02)OBJECTIVE: To assess parental permission for a neonate's research participation using the MacArthur competence assessment tool for clinical research (MacCAT-CR), specifically testing the components of understanding, ...
Variation in Standards of Research Compensation and Child Assent Practices: A Comparison of 69 Institutional Review Board-Approved Informed Permission and Assent Forms for 3 Multicenter Pediatric Clinical Trials Kimberly, Michael B.; Hoehn, K. Sarah; Feudtner, Chris; Nelson, Robert M.; Schreiner, Mark (2006-05)