Involving Children With Life-Shortening Illnesses in Decisions About Participation in Clinical Research: A Proposal for Shuttle Diplomacy and Negotiation
In: Kodish, Eric, ed. Ethics and Research with Children: A Case-Based Approach. New York: Oxford University Press; 2005: 323- 343.
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"I Want to Live, Until I Don't Want to Live Anymore": Involving Children With Life-Threatening and Life-Shortening Illnesses in Decision Making About Care and Treatment Bluebond-Langner, Myra; Belasco, Jean Bello; DeMesquita Wander, Marla (2010-09)Pediatric societies in North America and in the United Kingdom and Europe take the position that children should be part of the decision-making process. Less clear, however, is how that should be accomplished. This article ...