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dc.creatorSpriggs, M.en
dc.date.accessioned2016-01-09T00:00:51Zen
dc.date.available2016-01-09T00:00:51Zen
dc.date.created2004-04en
dc.date.issued2004-04en
dc.identifier.bibliographicCitationJournal of Medical Ethics 2004 April; 30(2): 176-187en
dc.identifier.urihttp://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Canaries+in+the+mines:+children,+risk,+non-therapeutic+research,+and+justice&title=Journal+of+Medical+Ethics+&volume=30&issue=2&spage=176-187&date=2004-04&au=Spriggs,+M.en
dc.identifier.urihttp://hdl.handle.net/10822/991664en
dc.description.abstractThe Kennedy Krieger lead paint study received a lot of attention after a US Court of Appeals ruled that a parent cannot consent to the participation of a child in non-therapeutic research. The ruling has raised fears that, if it goes unchallenged, valuable research might not proceed and ultimately all children would be harmed. The author discusses significant aspects of the study that have been neglected, and argues that the study was unethical because it involved injustice and its design meant that the study lacked importance and value. Issues of benefit, risk, and consent are vital, but it is sometimes a mistake to consider these issues before settling questions about justice and the importance and value of a research project. The author concludes by offering a strategy for researchers and reviewers of research to appreciate, in a vivid way, the implications of research participation.en
dc.formatArticleen
dc.languageenen
dc.sourceeweb:271546en
dc.subjectChildrenen
dc.subjectConsenten
dc.subjectJusticeen
dc.subjectResearchen
dc.subjectResearchersen
dc.subjectRisken
dc.subjectTherapeutic Researchen
dc.subject.classificationHuman Experimentation Policy Guidelines / Institutional Review Boardsen
dc.subject.classificationInformed Consent or Human Experimentationen
dc.subject.classificationResearch on Newborns and Minorsen
dc.titleCanaries in the Mines: Children, Risk, Non-Therapeutic Research, and Justiceen
dc.provenanceCitation prepared by the Library and Information Services group of the Kennedy Institute of Ethics, Georgetown University for the ETHXWeb database.en
dc.provenanceCitation migrated from OpenText LiveLink Discovery Server database named EWEB hosted by the Bioethics Research Library to the DSpace collection EthxWeb hosted by DigitalGeorgetown.en


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