Appendix B: Bill of Rights for Donor Families
In: Youngner, Stuart J.; Anderson, Martha W.; Schapiro, Renie, eds. Transplanting Human Tissue: Ethics, Policy, and Practice. New York: Oxford University Press; 2004: 199-202.
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A Bill to Define the Circumstances under which DNA Samples may be Collected, Stored, and Analyzed, and Genetic Information May be Collected, Stored, Analyzed, and Disclosed, to Define the Rights of Individuals and Persons with Respect to Genetic Information, to Define the Responsibilities of Persons with Respect to Genetic Information, to Protect Individuals and Families from Genetic Discrimination, to Establish Uniform Rules that Protect Individual Genetic Privacy, and to Establish Effective Mechanisms to Enforce the Rights and Responsibilities Established under this Act United States. Congress. Senate (1997-03-11)