Ethical Issues in Newborn Screening and the Impact of New Technologies
European Journal of Pediatrics 2003 December; 162(Supplement 1): S62-S66
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Parental Attitudes Toward Ethical and Social Issues Surrounding the Expansion of Newborn Screening Using New Technologies Hasegawa, L E; Fergus, K A; Ojeda, N; Au, S M (2011)This study assessed parent knowledge of newborn screening (NBS) and parent attitudes toward NBS for untreatable conditions, NBS for late-onset disorders and informed consent in NBS.
Ethical, legal, and social issues in health technology assessment for prenatal/preconceptional and newborn screening: a workshop report. Potter, Beth K.; Avard, Denise; Entwistle, V.; Kennedy, C.; Chakraborty, P.; McGuire, M.; Wilson, B. J. (2009)